[or-roots] SB 2093

Tue Apr 2 16:28:46 PDT 2013

let me just join in this discussion - - the genetic issue is a wonderful point and should be discussed as a major item , especially if there is talk of reducing the amount of information to be put on the certificate.  That is how my family discovered the presence of a strain of cancer in my grandfather and in my cousin - - who knew - - 

The bill is actually a "model" that is going around the country and I suspect it was picked up by staff of the Oregon Health Authority as they are monitoring such things - may or may not have been a specific notion of the Governor's, but as you note the language it was introduced by the Gov at the request of the Oregon Health Authority, and as they hear about "improvements" from other states, there is a temptation to adopt them without fully reviewing what we call "unintended consequences" that crop up.  Someone may have thought it was a great way to stop ID theft - and as we all well know (and has been well cited here) anybody with $39.95 can purchase a boatload of information that can be purloined for nefarious schemes! (Actually in reading the initial statement by staff of the Health Authority, it is to bring national uniformity - although there is testimony about the value of that as well.) 

The initial testimony on this bill was in February, 2013 and the -3 amendments were proposed on March 23, but have not been adopted.  Mary Beth Herkert, from Archives, has given testimony on the concerns with the proposed legislation that closely parallels that expressed by or-roots participants - The funeral directors have also expressed concerns as well as an interest in reworking the proposal.  The unadopted proposed amendments made the bill quite a bit longer - - 30 pages at least. 

The Health Authority is more interested in uniformity of national data - - and that completely misses the point of the interest of families in their heritage - we tend to see the human side, and data folks want things neat and concise and countable - - 

At this time, no further committee meetings have been scheduled as far as I can see on the Legislative Information System - I will keep watching.  Meanwhile, our personal contacts with our own legislators from our own districts is most helpful - to be sure they understand the larger picture of family history - -and personal stories - - 

'lyn Horine 

----- Original Message -----

From: "Sue Steward" <ssteward at ccountry.net> 
To: "or-roots mail list" <or-roots at listsmart.osl.state.or.us> 
Sent: Tuesday, April 2, 2013 3:23:40 PM 
Subject: Re: [or-roots] SB 2093 

Diane, I didn't even think about the genetic issues but that is a very good point. 

Sue 

On 4/2/2013 1:38 PM, Diane wrote: 

Great--thanks for an outline letter.....am going to reword this a little....we need to add genetic genealogy as necessary.  Today many physicians are asking genetic questions of their patients and this is excellent for our health and that of our children.  Genetic genealogy has eased the mind of my cousin who had stage 4 cancers....yes plural..and because of the genetic testing, her children are not prone.  She was an oddity.  She is the single mother of a 14 year old and a 4 year old.  After much medication and chemo, she will survive.  But, without the history of her parents, siblings, aunts and uncles, and grandparents, she would not have been able to receive the attention and probably the cure.  She is a test case.  
<blockquote>

----- Original Message ----- 
From: DJ 
To: or-roots mail list 
Sent: 02 April, 2013 11:30 AM 
Subject: Re: [or-roots] SB 2093 

Maybe we should put this on our Us Gen Web sites? 
<blockquote>

----- Original Message ----- 
From: Darlene 
To: or-roots mail list 
Sent: Wednesday, March 27, 2013 11:44 AM 
Subject: Re: [or-roots] SB 2093 

Fantastic letter.  Beautifully said. 

On 3/27/2013 11:14 AM, Leslie Chapman wrote: 

<blockquote>
I just fired this off to my state Senator, hope it meets every one's approval; 

Dear Senator Arnold Roblan; 

My favorite genealogical list has had the following bill brought to our attention; 

House Bill 2093 

http://landru.leg.state.or.us/13reg/measpdf/hb2000.dir/hb2093.intro.pdf 

Our most important concern is the feature that it appears to seek adding 25 years to the period of time which the general public cannot access vital statistics. I understand that many people may see this as strengthening safeguards against identity theft and creation of phony identification. In reality all it will accomplish is making life more difficult for we in the genealogical community and have little or no effect on those intended consequences. 

For a mere $39.95 with my handy dandy MasterCard I recently signed on to a web service that pretty much gives me access to the vital records of anyone I want information on, the more recent the information I want the better. I bought it because a cousin was wanting to contact an ex wife of her brother; boom for an additional $2.95 for the "details" i.e. exact address and current phone number. In many states this service provides actual copies of documents. So if the intent is to protect identification, it is a case of closing the barn door after the horse is gone.  

A further objection is that it appears to be creating a new level of State government at a time when we can't pay for what we have. If there are changes that genuinely need to be made in records keeping, they should be administratively handled within our current vital statistics organization. 

Yours respectfully: 

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Questions related to message content should be directed to list owner(s) or the sender of the message, by phone or email. 
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Version: 2013.0.3267 / Virus Database: 3162/6220 - Release Date: 04/02/13 
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