[or-roots] SB 2093

Tue Apr 2 18:19:11 PDT 2013

Thank You

On Tue, Apr 2, 2013 at 4:28 PM, <l.horine at comcast.net> wrote:

> let me just join in this discussion - - the genetic issue is a wonderful
> point and should be discussed as a major item, especially if there is talk
> of reducing the amount of information to be put on the certificate.  That
> is how my family discovered the presence of a strain of cancer in my
> grandfather and in my cousin - - who knew - -
>
>
>
> The bill is actually a "model" that is going around the country and I
> suspect it was picked up by staff of the Oregon Health Authority as they
> are monitoring such things - may or may not have been a specific notion of
> the Governor's, but as you note the language it was introduced by the Gov
> at the request of the Oregon Health Authority, and as they hear about
> "improvements" from other states, there is a temptation to adopt them
> without fully reviewing what we call "unintended consequences" that crop
> up.  Someone may have thought it was a great way to stop ID theft - and as
> we all well know (and has been well cited here) anybody with $39.95 can
> purchase a boatload of information that can be purloined for nefarious
> schemes! (Actually in reading the initial statement by staff of the Health
> Authority, it is to bring national uniformity - although there is testimony
> about the value of that as well.)
>
>
>
> The initial testimony on this bill was in February, 2013 and the -3
> amendments were proposed on March 23, but have not been adopted.  Mary Beth
> Herkert, from Archives, has given testimony on the concerns with the
> proposed legislation that closely parallels that expressed by or-roots
> participants - The funeral directors have also expressed concerns as well
> as an interest in reworking the proposal.  The unadopted proposed
> amendments made the bill quite a bit longer - - 30 pages at least.
>
>
>
> The Health Authority is more interested in uniformity of national data - -
> and that completely misses the point of the interest of families in their
> heritage - we tend to see the human side, and data folks want things neat
> and concise and countable - -
>
>
>
> At this time, no further committee meetings have been scheduled as far as
> I can see on the Legislative Information System - I will keep watching.
> Meanwhile, our personal contacts with our own legislators from our own
> districts is most helpful - to be sure they understand the larger picture
> of family history - -and personal stories - -
>
> 'lyn Horine
>
> ------------------------------
>
> *From: *"Sue Steward" <ssteward at ccountry.net>
> *To: *"or-roots mail list" <or-roots at listsmart.osl.state.or.us>
> *Sent: *Tuesday, April 2, 2013 3:23:40 PM
>
> *Subject: *Re: [or-roots] SB 2093
>
> Diane, I didn't even think about the genetic issues but that is a very
> good point.
>
> Sue
>
> On 4/2/2013 1:38 PM, Diane wrote:
>
> Great--thanks for an outline letter.....am going to reword this a
> little....we need to add genetic genealogy as necessary.  Today many
> physicians are asking genetic questions of their patients and this is
> excellent for our health and that of our children.  Genetic genealogy has
> eased the mind of my cousin who had stage 4 cancers....yes plural..and
> because of the genetic testing, her children are not prone.  She was an
> oddity.  She is the single mother of a 14 year old and a 4 year old.  After
> much medication and chemo, she will survive.  But, without the history of
> her parents, siblings, aunts and uncles, and grandparents, she would not
> have been able to receive the attention and probably the cure.  She is a
> test case.
>
> ----- Original Message -----
> *From:* DJ <mygen2 at d-matney.com>
> *To:* or-roots mail list <or-roots at listsmart.osl.state.or.us>
> *Sent:* 02 April, 2013 11:30 AM
> *Subject:* Re: [or-roots] SB 2093
>
> *Maybe we should put this on our Us Gen Web sites?*
>
> ----- Original Message -----
> *From:* Darlene <darlene at thecasteels.net>
> *To:* or-roots mail list <or-roots at listsmart.osl.state.or.us>
> *Sent:* Wednesday, March 27, 2013 11:44 AM
> *Subject:* Re: [or-roots] SB 2093
>
> Fantastic letter.  Beautifully said.
>
> On 3/27/2013 11:14 AM, Leslie Chapman wrote:
>
>   I just fired this off to my state Senator, hope it meets every one's
> approval;
>
>  Dear Senator Arnold Roblan;
>
> My favorite genealogical list has had the following bill brought to our
> attention;
>
> House Bill 2093
>
> http://landru.leg.state.or.us/13reg/measpdf/hb2000.dir/hb2093.intro.pdf
>
> Our most important concern is the feature that it appears to seek adding
> 25 years to the period of time which the general public cannot access vital
> statistics. I understand that many people may see this as strengthening
> safeguards against identity theft and creation of phony identification. In
> reality all it will accomplish is making life more difficult for we in the
> genealogical community and have little or no effect on those intended
> consequences.
>
> For a mere $39.95 with my handy dandy MasterCard I recently signed on to a
> web service that pretty much gives me access to the vital records of anyone
> I want information on, the more recent the information I want the better. I
> bought it because a cousin was wanting to contact an ex wife of her
> brother; boom for an additional $2.95 for the "details" i.e. exact address
> and current phone number. In many states this service provides actual
> copies of documents. So if the intent is to protect identification, it is a
> case of closing the barn door after the horse is gone.
>
> A further objection is that it appears to be creating a new level of State
> government at a time when we can't pay for what we have. If there are
> changes that genuinely need to be made in records keeping, they should be
> administratively handled within our current vital statistics organization.
>
> Yours respectfully:
>
>
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> or-roots at listsmart.osl.state.or.us
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> Hosted by the Oregon State Library. The Library is not responsible for
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> or the sender of the message, by phone or email.
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